Welcome

The BPNSU is a web-based conduit for surveillance, research, disease registry and audit for consultant members of the

British Paediatric Neurology Association.

New projects must be submitted to the BPNSU core group for approval.

Potential applicants are welcome to contact the core group informally for advice at an early stage of project development.

 

Listed below are the current active projects.

Click on the project name for more details

Project titleDisease typeLead clinician
European Network for Research on Alternating Hemiplegia of ChildhoodAlternating Hemiplegia of ChildhoodProfessorBrianNeville
National surveillance study of Aicardi-Goutieres syndrome and other congenital infection-like phenotypesAicardi-Goutieres Syndrome (AGS)DrYanickCrow
A descriptive study of "Migrating Partial Seizures in Infancy" in the UKMigrating Partial Seizures of InfancyDrRachelKneen
A United Kingdom Survey of Childhood MyastheniasMyastheniaDrJeremyParr
Encephalitis Lethargica Surveillance ProgrammeEncephalitis LethargicaDrAnnetteSchrag

Last updated 6th July 2008

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