2011
December
After 5 years, the Website gets a 'refresher'. The option to report earlier cases is removed and single-click reporting of zero cases seen for all projects is added in response to clinician request from a feedback survey.
January
Remember, once your project is active on the website, you will be contacted with details of how to access your project page where you can view details of responses to your project. Please contact the website administrator here if this does not occur within one week of your project going live
2010
1st March
Project 9 - The Prevalence and clinical outcome of Rasmussen's Encephalitis in children
2009
1st May
Project 8 - The Molecular Genetic Investigation of Autosomal Recessive Cryptogenic Infantile Spasms (ARCIS)
2008
14th August
Project 7 "Study of Outcome of Childhood Stroke" is launched.
30th June
Project 1 "An Epidemiological Study of Lesch Nyhan Disease in the United Kingdom", ends after 2 years.
5th February
February emailshot delayed until today for the addition of three new projects:
- A descriptive study of "Migrating Partial Seizures in Infancy" in the UK , Dr Rachel Kneen
- A United Kingdom Survey of Childhood Myasthenias, Dr Jeremy Parr
-
Encephalitis Lethargica Surveillance Programme, Dr Annette Schrag
2007
1st May
The third BPNSU project is active - Aicardi-Goutieres Syndrome (AGS), Dr Yanick Crow, Dr John Livingston
1st January
The second BPNSU project is active - Alternating Hemiplegia of Childhood, Prof. Brian Neville
2006
1st June
The first BPNSU project becomes active - Lesch Nyhan disease, Dr Gillian McCarthy
19th January
The BPNSU site launched